Call to Action on Undiagnosed Day – April 29, 2025
​

It’s time to come together and show the world the strength, unity, and determination of the global Undiagnosed community!
 

On April 29, 2025, we mark Global Undiagnosed Day—a day not about the disease, but about the people living without a diagnosis. This day is for the 350 million Person Living with an Undiagnosed Disease (PLWUD) and their families, clinicians, researchers, genetic counselors and patient organizations working tirelessly to find answers.
 

✨ Let’s Make Our Voices Heard

We invite you—whether you are a person living with an undiagnosed disease, family member to a PLWUD, caregiver, clinician, patient organization, researcher, or advocate—to stand with us in two powerful ways:
 

🎥 1. Submit a 1–2 Minute Video

Let the world know what you’re doing to support PLWUD and if you or your child living with an undiagnosed disease record a short message from your clinic, home, lab, or organization and share:

• A word of encouragement

• A highlight of your work

• A message from your country or region

• Your story or personal diagnostic journey

Together, these videos will become a global chorus of hope and determination
.

✅ Register here:
👉 Undiagnosed Day Form for PLWUD, organizations, health care providers and stakeholders  

 

🩺 2. Clinicians: Register Your Participation

If you will be seeing a child or adult with an undiagnosed disease on April 29, we want to know! Whether or not you present a case, your participation is a vital part of raising awareness.

Optional: Join us for the global virtual roundtable on April 30 to briefly present a case (with family consent).
 

✅ Clinicians, please register here:
👉 Undiagnosed Day Registration Form for Clinicians | FormSG
 

📣 Together, We Are a Global Force
 

By registering and participating, you will receive:

• Social media materials to amplify the message

• A chance to be part of a worldwide community raising awareness

• A shared platform to show that PLWUD are not alone
   

Let’s light up the world for those still searching for answers.

Let’s make April 29–30 a turning point.
 

Join us. Be seen. Be heard. Be part of the solution.